top of page
Weekly Blogs that Inspire MORE.
Our lupus blogs are patient driven and patient centered. Need help?
We are here.
VOTED TOP LUPUS BLOG BY FEEDSPOT!
Search
Using My Spoons
SPOON THEORY: Christine Miserandino, an author with lupus, invented the spoon theory one day when her friend wanted to understand what...
Jul 12, 2024
Introducing Lupus Lyfts!
Historically, one of the biggest barriers to care in lupus patient groups is transportation. This problem has a disproportionate impact...
May 25, 2024
10 Lupus Tips on May 10th!
On World Lupus Day, we were joined by Dr. Don Thomas, Board Certified Rheumatologist and author of The Lupus Encyclopedia. In his...
May 10, 2024
Use Your Patient Power to Improve Lupus Diagnostics!
Lupus is a chronic inflammatory autoimmune disease with a wide range of clinical presentations resulting from its effect on multiple...
May 9, 2024
Lupus and Sexual Assault
April is Sexual Assault Awareness Month. You may be wondering, “Why is a lupus nonprofit writing a blog on sexual assault awareness?” The...
Apr 21, 2024
I Got Retinopathy from HCQ. Here is My Story...
I was diagnosed with lupus in June 1992. It took me six years to get diagnosed. I was on glucocorticoids (Prednisone/Prednisolone),...
Mar 26, 2024
Why I Choose to Wear Makeup While Living with a Chronic Illness
We have all been told those infamous words, “You don’t look sick,” more times than we care to recall. Due to this, I thought I would...
Jan 13, 2024
"I'm Fine"
What is the most common response when someone asks, “How are you feeling?” If you are like the majority of lupus patients, the first...
Oct 28, 2023
My Lupus Story
I was diagnosed 31 years ago with pSLE. Here is my story. I was diagnosed with lupus in June 1992. It took me six years to get diagnosed....
Oct 26, 2023
What to Say When Someone Asks, "What Is Lupus?"
Lupus is a challenging and complicated condition to live with, which makes sense why it would be difficult to explain when someone asks...
Sep 29, 2023
How the Arts Can Help With Chronic Pain
The pandemic was isolating. As a single gal with an autoimmune disorder, there were elements of working from home that were a dream come...
Sep 25, 2023
What is Rituxan?
Lupus is a complex condition requiring doctors to often think outside the box regarding treatment and symptom management. There are...
Sep 22, 2023
My Journey with Scleroderma
Scleroderma is an autoimmune disease that affects close to 300,000 people worldwide. It attacks the body's immune system, killing the...
Jun 22, 2023
Lupus and Migraines
You know the sensation, a slight subtle pressure that can quickly turn into the feeling like your head is being squeezed in a skull...
Jun 6, 2023
Breaking Down Safe and Effective Exercises for Lupus
“Exercise is as important to living as eating and sleeping.” - Don Thomas, Jr. M.D., author of The Lupus Encyclopedia We recently...
May 30, 2023
How Your Personality Can Impact How You Manage Your Lupus
INTRO If you were asked to "describe your personality," what would you say? Are you more open or cautious? Impulsive or a planner?...
May 7, 2023
Blood Disorders and Lupus
“You cannot talk about lupus and not talk about blood. The two are intricately entwined.” - Don Thomas, Jr. M.D. The Lupus Encyclopedia,...
Apr 27, 2023
What Is an Autoimmune Disease?
March is National Autoimmune Disease Awareness Month! According to the Autoimmune Association, Autoimmunity is now one of the most...
Mar 4, 2023
Tai Chi: So Many Health Benefits
By Margie Willis “In through the nose. Out through the mouth. Slowly. Moving and breathing as one. Focus to quiet the mind. Feel the chi...
Feb 24, 2023
How My Faith Has Changed From Living With a Chronic Illness
“He [God] spared me.” She said as she told the story of her near-fatal acute infection she survived in her early childhood. “He saved my...
Feb 20, 2023
Share YOUR Story.
We would love to hear more about your unique lupus journey and give you an opportunity to use your experience for good to encourage and inspire others! Click the button to email your story to us and a chance to be featured on our blog and social media.
bottom of page