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The Lightness of Being: What to Leave Behind in 2025
As we step into 2026, many of us are doing the usual "New Year, New Me" dance. But when you live with lupus or a chronic illness, that narrative can feel exhausting. We don’t need more "hustle"; we need more grace. Living through 2025 with a chronic condition likely meant navigating flares, pharmacy delays, and the mental load of "performing" wellness. To move forward with a lighter heart, here are five things you should officially forgive yourself for and let go of today. 1
Jan 1


Looking Ahead: 5 Things to Be Mindful of When Navigating Lupus in 2026
If you are living with a chronic illness like lupus, you know that time is often measured differently. It’s measured in flare-ups and remissions, in appointments and lab results, and in the energy you carefully ration day by day. As we settle into this new year, the landscape of chronic illness management is shifting again. We are past the acute chaos of the early 2020s, and technology has integrated into our health in ways we only dreamed of a decade ago. Yet, the fundamenta
Dec 29, 2025


Why Your Health Insurance is Changing in 2026 (And How to Prepare)
Managing a chronic illness like lupus is already a full-time job. When you add the news that health insurance premiums are projected to spike significantly in 2026—with some ACA Marketplace plans seeing jumps as high as 26% —it’s natural to feel a sense of "medical sticker shock." With the expiration of the enhanced premium tax credits and the implementation of new legislation, such as the One Big Beautiful Bill Act (OBBBA) , the landscape of healthcare is shifting. The expe
Dec 17, 2025


🎁 The Thoughtful Holiday Gift Guide for Your Loved One with Lupus
The holiday season is a wonderful time for warmth, connection, and showing the people you care about how much they mean to you. When shopping for someone living with lupus (Systemic Lupus Erythematosus), a chronic and often unpredictable autoimmune disease, the most meaningful gifts are those that offer comfort, practicality, and support for managing symptoms like fatigue, joint pain, and cold sensitivity. Here is a guide to thoughtful gifts that can make a real difference i
Dec 15, 2025


Clearing the Fog: Practical Tips for Combating Lupus Memory Loss
If you live with Lupus (Systemic Lupus Erythematosus or SLE), you are likely familiar with "lupus fog" or "brain fog." This isn't just ordinary forgetfulness; it's a frustrating cognitive impairment that can make it hard to focus, remember names, find the right words, and keep track of complex tasks. Lupus fog is a genuine symptom of the disease, often linked to inflammation or other changes in the central nervous system. The good news is that while there is no single cure, t
Dec 11, 2025


🎁 The Lupus Holiday Plate: Feast or Flare? Your Guide to Festive Foods
The holidays are a time for joy, family, and, let's be honest, delicious food! But for the hundreds of thousands of Americans living with lupus (Systemic Lupus Erythematosus or SLE) , the abundant festive spreads can sometimes feel less like a treat and more like a potential trigger for a flare. Lupus is a chronic autoimmune condition in which the immune system mistakenly attacks healthy tissues, leading to widespread inflammation and tissue damage. There are several types o
Dec 2, 2025


"Just Be Healthy": The Cruel Myth Dr. Oz Perpetuated on the Chronically Ill
Courtesy of @ABCNews In the world of daytime television and celebrity health advice, Dr. Mehmet Oz has long been a towering figure. But among the sea of wellness tips and dubious miracle cures, some of his pronouncements have landed with a particularly stinging and harmful impact. One of the most egregious examples is the insidious, victim-blaming mantra: the idea that people can (and therefore should ) "just be healthy" and everything in America will fix itself. While seemin
Nov 23, 2025


Why Chronic Illness Patients Get Tired of Talking About It
Courtesy of @positivelyrheumatoid and @TheSimpsons For someone living with a chronic illness , like lupus (Systemic Lupus Erythematosus), the disease is an undeniable, day-to-day reality. Yet, you might notice that a patient often grows weary, even resistant, when asked to discuss their health. This isn't because they don't want to educate people; it’s because the non-stop necessity of discussing, explaining, and justifying their illness becomes a burden in itself. Here are t
Nov 10, 2025


The Silent Battle: How Lupus Impacts Military Service Members and Veterans
For those who have served or are currently serving in the U.S. Military, the diagnosis of lupus (Systemic Lupus Erythematosus - SLE) introduces a unique and difficult set of challenges. Lupus , a chronic autoimmune disease where the body's immune system attacks its own healthy tissues, is difficult for anyone to manage. For military personnel, this illness clashes directly with the demands of service, deployment, and the subsequent transition to veteran life. Evidence sugges
Nov 9, 2025


💔 The Love-Hate Relationship: Why It’s So Hard to Get Off Prednisone for Lupus Patients
For many Lupus Warriors, prednisone (a corticosteroid) is a lifeline. When a major flare strikes, causing organ-threatening inflammation or debilitating pain, this powerful drug is often the fastest and most effective treatment. It works quickly to suppress the overactive immune system, bringing relief and snatching control back from a runaway disease. But for all its benefits, prednisone comes with a heavy toll of side effects—from weight gain and "moon face" to insomnia, m
Nov 4, 2025


Awareness Spotlight: Understanding the Diabetes-Lupus Connection
For millions of people, a diagnosis of a chronic disease is a call to action—to learn, to adapt, and to manage their health proactively. When conditions like diabetes and systemic lupus erythematosus (SLE) , or lupus, intersect, the need for awareness and vigilance becomes even more critical. Both diabetes and lupus are complex, systemic conditions. For those managing lupus, there is a distinct and important link to be aware of regarding blood sugar regulation and diabetes
Nov 2, 2025


🎁 The Hidden Challenges: Top 5 Difficulties for Lupus Patients During the Holidays
The holiday season is often advertised as a time of joy, endless energy for non-stop events, and celebratory gatherings. While that's true for many, for those living with lupus , this time of year presents a unique set of challenges that can make the "most wonderful time of the year" feel more woeful than wonderful . Lupus is a chronic autoimmune disease where the immune system mistakenly attacks healthy tissue, causing inflammation and damage in various parts of the body.
Oct 29, 2025


A Unique Journey: The Challenges of Pregnancy and Motherhood with Lupus
For women living with lupus, the desire to start or grow a family comes with a unique set of questions and anxieties. It’s not simply a matter of getting pregnant, but of managing a complex autoimmune disease while supporting a pregnancy, which is often called a "high-risk" journey. While having a successful, healthy pregnancy with lupus is absolutely possible, it requires meticulous planning, close monitoring, and teamwork with specialists. Most recent studies and clinical
Oct 19, 2025


"Pill Fright": Why Starting New Lupus Meds Can Feel Terrifying
Receiving a new prescription when you have lupus is often a moment of mixed emotions. There's the hope that this drug will finally get your flares under control and give you back some quality of life. But often, that hope is quickly overshadowed by fear . If you've ever held a new pill bottle and felt a wave of anxiety, you’ve experienced what many in the chronic illness community call "pill fright" or medication anxiety. For those with lupus, this fear is especially intense
Oct 17, 2025


Why Am I Gaining Weight with Lupus? Understanding the Connection
Living with lupus is a constant balance of managing inflammation, dealing with unpredictable flares, and navigating complex treatments. For many, an unexpected and frustrating challenge is unexplained weight gain . If you're finding the scale creeping up while managing your lupus, know that you’re not alone. The weight gain associated with lupus is often a direct result of the disease itself and the medications used to treat it, rather than just changes in diet or activity.
Oct 14, 2025


Navigating Life with Lupus: 7 Essential Things to Know
Lupus is a chronic autoimmune disease that can affect virtually any part of your body—from your skin and joints to your kidneys, blood,...
Oct 12, 2025


Chronic Illness and Your Nervous System: Understanding the Polyvagal Theory
If you live with a chronic illness, you know the daily reality is a constant battle—not just against physical symptoms, but also against...
Oct 9, 2025


Understanding Lupus: What Causes This Complex Autoimmune Disease?
Lupus is a chronic autoimmune disease that affects millions of people worldwide. Unlike a typical immune system that fights off foreign...
Oct 6, 2025


Lupus and Perimenopause: Managing the Transition
Women navigating perimenopause while living with lupus face a complex intersection of hormonal shifts and autoimmune activity....
Sep 23, 2025


Living with a Chronic Illness in the U.S. is Hard
In the U.S., a significant lack of public understanding about chronic illnesses like lupus makes living with the condition incredibly...
Sep 21, 2025
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