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Weekly Blogs that Inspire MORE.
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Respecting Your Energy Budget vs. Visiting the Lupus Loan Shark
By Margie Willis Able-bodied people can afford to be reckless with their daily energy budgets. But if you have lupus, you can't get away...
Jun 7
68
Do You Have Lupus?
The Lupus Symptom Checklist from the American College of Rheumatology If you have watched any episode of the TV show “House” you have...
Feb 22
956
How Rolling Back DEI Programs Will Impact the Disability and Chronic Illness Community
Only a few days into his second term in office, President Trump and his administration have not held back on their promises to target and...
Jan 30
481
Time to Thrive in 2025!
“Our job is not to deny the story, but to defy the ending-to rise strong, recognize our story, and rumble with the truth until we get to...
Jan 1
261
Finding Strength: How Blogging Made a Difference in My Life with Lupus
Diagnosed in my early twenties, lupus has been a large part of my life for many years. Although, I feel that I had been suffering from...
Oct 22, 2024
208
Lupus and Chronic Pain
National Pain Awareness Month is observed in September every year. This is a time when pain experts and activists from all around get...
Sep 20, 2024
277
Beyond Brave
“You’re so brave.” How many times have you been told that you are “ brave? ” When that happens, how does it make you feel? Are you...
Sep 2, 2024
379
Using My Spoons
SPOON THEORY: Christine Miserandino, an author with lupus, invented the spoon theory one day when her friend wanted to understand what...
Jul 13, 2024
641
Introducing Lupus Lyfts!
Historically, one of the biggest barriers to care in lupus patient groups is transportation. This problem has a disproportionate impact...
May 25, 2024
258
10 Lupus Tips on May 10th!
On World Lupus Day, we were joined by Dr. Don Thomas, Board Certified Rheumatologist and author of The Lupus Encyclopedia. In his...
May 10, 2024
563
Use Your Patient Power to Improve Lupus Diagnostics!
Lupus is a chronic inflammatory autoimmune disease with a wide range of clinical presentations resulting from its effect on multiple...
May 10, 2024
277
Lupus and Sexual Assault
April is Sexual Assault Awareness Month. You may be wondering, “Why is a lupus nonprofit writing a blog on sexual assault awareness?” The...
Apr 22, 2024
498
I Got Retinopathy from HCQ. Here is My Story...
I was diagnosed with lupus in June 1992. It took me six years to get diagnosed. I was on glucocorticoids (Prednisone/Prednisolone),...
Mar 26, 2024
185
Why I Choose to Wear Makeup While Living with a Chronic Illness
We have all been told those infamous words, “You don’t look sick,” more times than we care to recall. Due to this, I thought I would...
Jan 13, 2024
440
"I'm Fine"
What is the most common response when someone asks, “How are you feeling?” If you are like the majority of lupus patients, the first...
Oct 29, 2023
589
My Lupus Story
I was diagnosed 31 years ago with pSLE. Here is my story. I was diagnosed with lupus in June 1992. It took me six years to get diagnosed....
Oct 27, 2023
698
What to Say When Someone Asks, "What Is Lupus?"
Lupus is a challenging and complicated condition to live with, which makes sense why it would be difficult to explain when someone asks...
Sep 29, 2023
1,117
How the Arts Can Help With Chronic Pain
The pandemic was isolating. As a single gal with an autoimmune disorder, there were elements of working from home that were a dream come...
Sep 25, 2023
170
What is Rituxan?
Lupus is a complex condition requiring doctors to often think outside the box regarding treatment and symptom management. There are...
Sep 22, 2023
170
My Journey with Scleroderma
Scleroderma is an autoimmune disease that affects close to 300,000 people worldwide. It attacks the body's immune system, killing the...
Jun 23, 2023
401
Share YOUR Story.
We would love to hear more about your unique lupus journey and give you an opportunity to use your experience for good to encourage and inspire others! Click the button to email your story to us and a chance to be featured on our blog and social media.
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