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"Just Be Healthy": The Cruel Myth Dr. Oz Perpetuated on the Chronically Ill
Courtesy of @ABCNews In the world of daytime television and celebrity health advice, Dr. Mehmet Oz has long been a towering figure. But among the sea of wellness tips and dubious miracle cures, some of his pronouncements have landed with a particularly stinging and harmful impact. One of the most egregious examples is the insidious, victim-blaming mantra: the idea that people can (and therefore should ) "just be healthy" and everything in America will fix itself. While seemin
1 day ago


Why Chronic Illness Patients Get Tired of Talking About It
Courtesy of @positivelyrheumatoid and @TheSimpsons For someone living with a chronic illness , like lupus (Systemic Lupus Erythematosus), the disease is an undeniable, day-to-day reality. Yet, you might notice that a patient often grows weary, even resistant, when asked to discuss their health. This isn't because they don't want to educate people; it’s because the non-stop necessity of discussing, explaining, and justifying their illness becomes a burden in itself. Here are t
Nov 10


The Silent Battle: How Lupus Impacts Military Service Members and Veterans
For those who have served or are currently serving in the U.S. Military, the diagnosis of lupus (Systemic Lupus Erythematosus - SLE) introduces a unique and difficult set of challenges. Lupus , a chronic autoimmune disease where the body's immune system attacks its own healthy tissues, is difficult for anyone to manage. For military personnel, this illness clashes directly with the demands of service, deployment, and the subsequent transition to veteran life. Evidence sugges
Nov 9


💔 The Love-Hate Relationship: Why It’s So Hard to Get Off Prednisone for Lupus Patients
For many Lupus Warriors, prednisone (a corticosteroid) is a lifeline. When a major flare strikes, causing organ-threatening inflammation or debilitating pain, this powerful drug is often the fastest and most effective treatment. It works quickly to suppress the overactive immune system, bringing relief and snatching control back from a runaway disease. But for all its benefits, prednisone comes with a heavy toll of side effects—from weight gain and "moon face" to insomnia, m
Nov 4


Awareness Spotlight: Understanding the Diabetes-Lupus Connection
For millions of people, a diagnosis of a chronic disease is a call to action—to learn, to adapt, and to manage their health proactively. When conditions like diabetes and systemic lupus erythematosus (SLE) , or lupus, intersect, the need for awareness and vigilance becomes even more critical. Both diabetes and lupus are complex, systemic conditions. For those managing lupus, there is a distinct and important link to be aware of regarding blood sugar regulation and diabetes
Nov 2


🎁 The Hidden Challenges: Top 5 Difficulties for Lupus Patients During the Holidays
The holiday season is often advertised as a time of joy, endless energy for non-stop events, and celebratory gatherings. While that's true for many, for those living with lupus , this time of year presents a unique set of challenges that can make the "most wonderful time of the year" feel more woeful than wonderful . Lupus is a chronic autoimmune disease where the immune system mistakenly attacks healthy tissue, causing inflammation and damage in various parts of the body.
Oct 29


A Unique Journey: The Challenges of Pregnancy and Motherhood with Lupus
For women living with lupus, the desire to start or grow a family comes with a unique set of questions and anxieties. It’s not simply a matter of getting pregnant, but of managing a complex autoimmune disease while supporting a pregnancy, which is often called a "high-risk" journey. While having a successful, healthy pregnancy with lupus is absolutely possible, it requires meticulous planning, close monitoring, and teamwork with specialists. Most recent studies and clinical
Oct 19


"Pill Fright": Why Starting New Lupus Meds Can Feel Terrifying
Receiving a new prescription when you have lupus is often a moment of mixed emotions. There's the hope that this drug will finally get your flares under control and give you back some quality of life. But often, that hope is quickly overshadowed by fear . If you've ever held a new pill bottle and felt a wave of anxiety, you’ve experienced what many in the chronic illness community call "pill fright" or medication anxiety. For those with lupus, this fear is especially intense
Oct 17


Why Am I Gaining Weight with Lupus? Understanding the Connection
Living with lupus is a constant balance of managing inflammation, dealing with unpredictable flares, and navigating complex treatments. For many, an unexpected and frustrating challenge is unexplained weight gain . If you're finding the scale creeping up while managing your lupus, know that you’re not alone. The weight gain associated with lupus is often a direct result of the disease itself and the medications used to treat it, rather than just changes in diet or activity.
Oct 14


Navigating Life with Lupus: 7 Essential Things to Know
Lupus is a chronic autoimmune disease that can affect virtually any part of your body—from your skin and joints to your kidneys, blood,...
Oct 12


Chronic Illness and Your Nervous System: Understanding the Polyvagal Theory
If you live with a chronic illness, you know the daily reality is a constant battle—not just against physical symptoms, but also against...
Oct 9


Understanding Lupus: What Causes This Complex Autoimmune Disease?
Lupus is a chronic autoimmune disease that affects millions of people worldwide. Unlike a typical immune system that fights off foreign...
Oct 6


Lupus and Perimenopause: Managing the Transition
Women navigating perimenopause while living with lupus face a complex intersection of hormonal shifts and autoimmune activity....
Sep 23


Living with a Chronic Illness in the U.S. is Hard
In the U.S., a significant lack of public understanding about chronic illnesses like lupus makes living with the condition incredibly...
Sep 21


Understanding Lupus: A Complex Autoimmune Disease
Lupus is a chronic autoimmune disease that can affect many parts of the body. An autoimmune disease occurs when the body's immune system,...
Sep 15


Are GLP-1 Medications Safe for People with Lupus? A Closer Look
GLP-1 medications like Ozempic, Wegovy, and Mounjaro have become a hot topic for their effectiveness in weight loss and managing blood...
Sep 11


Navigating New Health Policies: A Look at the Impact on Chronic Illness and the Immunosuppressed
For many Americans living with chronic health conditions or immunosuppression, the state of public health policy is something that needs...
Sep 9


Dysautonomia in Autoimmune Disease
I have had autoimmune disease for several years now. Right now, lupus and scleroderma/MCTD are driving the immune system. It’s been a...
Jun 19


Respecting Your Energy Budget vs. Visiting the Lupus Loan Shark
By Margie Willis Able-bodied people can afford to be reckless with their daily energy budgets. But if you have lupus, you can't get away...
Jun 7


Do You Have Lupus?
The Lupus Symptom Checklist from the American College of Rheumatology If you have watched any episode of the TV show “House” you have...
Feb 21
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