Lupus Blog

Weekly Blogs that Inspire MORE.

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6 days ago

Beyond Brave

“You’re so brave.” How many times have you been told that you are “ brave? ” When that happens, how does it make you feel? Are you...

Jul 13

Using My Spoons

SPOON THEORY: Christine Miserandino, an author with lupus, invented the spoon theory one day when her friend wanted to understand what...

May 25

Introducing Lupus Lyfts!

Historically, one of the biggest barriers to care in lupus patient groups is transportation. This problem has a disproportionate impact...

May 10

10 Lupus Tips on May 10th!

On World Lupus Day, we were joined by Dr. Don Thomas, Board Certified Rheumatologist and author of The Lupus Encyclopedia. In his...

May 10

Use Your Patient Power to Improve Lupus Diagnostics!

Lupus is a chronic inflammatory autoimmune disease with a wide range of clinical presentations resulting from its effect on multiple...

Apr 22

Lupus and Sexual Assault

April is Sexual Assault Awareness Month. You may be wondering, “Why is a lupus nonprofit writing a blog on sexual assault awareness?” The...

Mar 26

I Got Retinopathy from HCQ. Here is My Story...

I was diagnosed with lupus in June 1992. It took me six years to get diagnosed. I was on glucocorticoids (Prednisone/Prednisolone),...

Jan 13

Why I Choose to Wear Makeup While Living with a Chronic Illness

We have all been told those infamous words, “You don’t look sick,” more times than we care to recall. Due to this, I thought I would...

Oct 29, 2023

"I'm Fine"

What is the most common response when someone asks, “How are you feeling?” If you are like the majority of lupus patients, the first...

Oct 27, 2023

My Lupus Story

I was diagnosed 31 years ago with pSLE. Here is my story. I was diagnosed with lupus in June 1992. It took me six years to get diagnosed....

Sep 29, 2023

What to Say When Someone Asks, "What Is Lupus?"

Lupus is a challenging and complicated condition to live with, which makes sense why it would be difficult to explain when someone asks...

Sep 25, 2023

How the Arts Can Help With Chronic Pain

The pandemic was isolating. As a single gal with an autoimmune disorder, there were elements of working from home that were a dream come...

Sep 22, 2023

What is Rituxan?

Lupus is a complex condition requiring doctors to often think outside the box regarding treatment and symptom management. There are...

Jun 23, 2023

My Journey with Scleroderma

Scleroderma is an autoimmune disease that affects close to 300,000 people worldwide. It attacks the body's immune system, killing the...

Jun 6, 2023

Lupus and Migraines

You know the sensation, a slight subtle pressure that can quickly turn into the feeling like your head is being squeezed in a skull...

May 31, 2023

Breaking Down Safe and Effective Exercises for Lupus

“Exercise is as important to living as eating and sleeping.” - Don Thomas, Jr. M.D., author of The Lupus Encyclopedia We recently...

May 7, 2023

How Your Personality Can Impact How You Manage Your Lupus

INTRO If you were asked to "describe your personality," what would you say? Are you more open or cautious? Impulsive or a planner?...

Apr 28, 2023

Blood Disorders and Lupus

“You cannot talk about lupus and not talk about blood. The two are intricately entwined.” - Don Thomas, Jr. M.D. The Lupus Encyclopedia,...

Mar 5, 2023

What Is an Autoimmune Disease?

March is National Autoimmune Disease Awareness Month! According to the Autoimmune Association, Autoimmunity is now one of the most...

Feb 25, 2023

Tai Chi: So Many Health Benefits

By Margie Willis “In through the nose. Out through the mouth. Slowly. Moving and breathing as one. Focus to quiet the mind. Feel the chi...

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