The More Than Lupus Foundation
The More Than Lupus Foundation is a not-for-profit organization formed by Creator of More Than Lupus, Kelli Roseta.
The mission of the More Than Lupus Foundation is to provide programs and support for those living with lupus, advocate for their needs, and collaborate with other government and lupus organizations to strive toward improving quality of life, and ultimately finding a cure.
The vision of the More Than Lupus Foundation is clear, to bring awareness in a world where many still do not know what lupus is, nor take it seriously, and allow lupus to finally be recognized and supported by the public and government. Additionally, to provide desperately needed services to those living with lupus, so that no person feels like he or she is fighting alone.
Donations made toward The More Than Lupus Foundation help the following services:
Online Support Groups: The "Lupus Live" Facebook semi-weekly support chats are an amazing way to foster connections with others in the lupus community from the comfort of your own home or office.
In-Person Support Groups: The monthly In-Person Support Group lends to an environment of acceptance and community. We meet the third Saturday of the month, every month.
Hospital Visits: Hospital visits are made personally by Kelli, and items such as toiletries and reading materials are provided as needed.
Informational Blogs & Resources: The MTL lupus blog focuses on a variety of lupus topics. Everything from living with lupus tips to symptom explanations - it is a wealth of information that is there for when you need it most.
Educational Symposiums: As a patient driven and patient focused organization, we have our finger on the pulse of the needs of the lupus community. Our symposiums focus on those critical needs - like advocating for yourself, minority health, and thriving with a chronic illness.
Awareness: MTL proudly collaborates with various lupus organizations and programs in effort to spur awareness and increase research funding.
Additional Resources/Emergency Assistance: MTL has valuable resources for education, support, and financial/legal assistance. If you have an emergency financial need, please email
Board of Directors
Patti Casas is the Southern California business owner of Casas Career Search and CCS Resumes and serves as More Than Lupus’ Financial Secretary. Having worked with various nonprofits in the past, she brings a financial savvy and unique understanding of bookkeeping and strategic financial planning to the Board of Directors. While Lupus has not physically affected Patti’s life, it has emotionally affected it as she is Founder Kelli Roseta’s Mom and has been by her side throughout her 28-year Lupus journey. She travels to Portland on a regular basis to assist with events and fundraising and her greatest pride is being Kelli’s mom and Luca’s Nana.
Anita J. Love is from Portland, OR where she graduated high school from St. Mary’s Academy and college from Portland State University with a degree in Speech Communications & Journalism. Over the course of their marriage Anita and her family lived in five states, in which they also raised six foster children. Her professional career includes employment with The Chicago Sun Times, NPR radio WGTE Toledo, OH, United Way of the San Francisco Bay area, NBC Affiliate WNWO, and KATU TV, Portland, OR.
Upon Anita’s return to Portland she was the Program Manager for Girl Scouts Beyond Bars, a Girl Scout Troop created to reduce inter-generational incarceration at Coffee Creek Correctional Facility in Wilsonville, OR. Anita’s lupus diagnosis forced her to retire from Girl Scouts of Oregon and Southwest Washington. Anita has lived with & battled lupus for more than twenty years and at age 66 shows no signs of slowing down with her involvement with More Than Lupus.
When not helping to increase the awareness of SLE Anita enjoys spending time with her three children and ten grandchildren. Anita has many sayings about lupus and her most favorite is “I may have lupus but lupus does NOT have me.” Anita finds much joy in being one of the oldest More Than Lupus support members and says it’s rewarding to be able to share her journey of balancing life, family, career and juggling being a daughter, woman, wife, mother and best lupus advocate she can be!
Nick Roseta is a Portland, OR native. Whether in his personal or professional life, one of Nick’s greatest strengths is connecting with people on an authentic level and developing and maintaining long-term relationships. Nick has been a Certified Porsche Brand Ambassador since May of 2011, but has been in the automotive industry off and on over a span of 17 years. He received the 2014 and 2017 Porsche Sales Excellence Award “Top 100 Worldwide.” When he is not working, he spends time with his wonderful wife, Kelli and their son, Luca. Nick’s involvement with helping the lupus community began the moment Kelli shared with him her personal story with lupus. It is his goal to help in anyway he can, not only to improve his wife's life, but anyone suffering with this devastating illness. Through his business and marketing experience, diverse clientele connections, and love for event planning, he is able to apply these attributes to his role at More Than Lupus and hopefully, make a difference.
Christine Von Raesfeld
Christine Von Raesfeld is a leader in bringing a critically needed patient perspective to cutting edge medical innovations. A patient advocate committed to providing patients with chronic and rare diseases with the support they need, Christine works with patient advocacy organizations, industry representatives, and individual patients and their family members. Living with many rare and chronic diseases, she believes that in order to foster understanding and empowerment, patients must be treated as people first.
Christine’s drive to make lives better for patients has been nationally recognized. Earlier this year, she spoke on stage at the Startup Health Festival as an invited guest of Sanguine Biosciences. In 2018, Christine was chosen as a member of the Team of Patient Advisers for PatientsLikeMe, a company working to create digital avatars of patients and ‘healthy’ individuals so that in the future, medication can be first tested on the digital recreations. She was also recognized as a Wego Health 2018 Top 10 Healthcare Collaborators Patient Leader as well as being named one of the Silicon Valley Business Journal's 100 Women of Influence for 2019.
On the community side, besides her role at More Than Lupus, she also volunteers her time with the Lupus and Allied Diseases Association, as well as many other grassroots organizations. She provides an honest patient perspective at conferences which helps companies advance their patient-centric initiatives.
Christine’s conference speaking engagements, consulting efforts, and ability to share her personal experiences have allowed her to bring a much needed change to the healthcare industry while bridging the gap between bio-pharmaceutical and patient stakeholders.
HONORARY ADVISORY MEMBERS
Dr. Lisa Shadburn, PhD, RPT-S
Shannon Prestella, MFA, BA
Ana Bick, RN, BSN
The More Than Lupus Foundation is a Oregon registered 501 c(3) non-profit incorporation that is organized exclusively for charitable, educational, and scientific purposes. The business activity for said organization is as follows: a place for those with lupus to connect, grow, and inspire others, to increase lupus awareness, support for lupus individuals, and spur research.
A sample of More Than Lupus' partners include:
Lupus Research Alliance, Lupus Foundation of America, Lupus and Allied Disease Association, Michigan Lupus Foundation, Science for Lupus, Opinions 4 Good, Lupus Research Program, GSK, Exagen Inc.