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Weekly Blogs that Inspire MORE.
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Understanding Lupus: A Complex Autoimmune Disease
Lupus is a chronic autoimmune disease that can affect many parts of the body. An autoimmune disease occurs when the body's immune system,...
Sep 15, 2025


Are GLP-1 Medications Safe for People with Lupus? A Closer Look
GLP-1 medications like Ozempic, Wegovy, and Mounjaro have become a hot topic for their effectiveness in weight loss and managing blood...
Sep 11, 2025


Navigating New Health Policies: A Look at the Impact on Chronic Illness and the Immunosuppressed
For many Americans living with chronic health conditions or immunosuppression, the state of public health policy is something that needs...
Sep 9, 2025


Dysautonomia in Autoimmune Disease
I have had autoimmune disease for several years now. Right now, lupus and scleroderma/MCTD are driving the immune system. It’s been a...
Jun 19, 2025


Respecting Your Energy Budget vs. Visiting the Lupus Loan Shark
By Margie Willis Able-bodied people can afford to be reckless with their daily energy budgets. But if you have lupus, you can't get away...
Jun 7, 2025


Do You Have Lupus?
The Lupus Symptom Checklist from the American College of Rheumatology If you have watched any episode of the TV show “House” you have heard the main character utter (in frustration) the infamous words, “It’s not lupus.” However, if you are reading this, I assume you might be suspecting it might indeed be lupus. Going in circles from specialist to specialist, trying to figure out various bizarre and overwhelming symptoms can be incredibly puzzling. How do you know if it ac
Feb 21, 2025


How Rolling Back DEI Programs Will Impact the Disability and Chronic Illness Community
Only a few days into his second term in office, President Trump and his administration have not held back on their promises to target and terminate federal government agencies that oversee diversity, equity, and inclusion programs. In his words, these “illegal and immoral” DEI programs and the employees who work for them (now placed on paid leave until a written plan for their dismissal is submitted by the end of January) were part of a “radical and wasteful” process “under
Jan 30, 2025


Time to Thrive in 2025!
“Our job is not to deny the story, but to defy the ending-to rise strong, recognize our story, and rumble with the truth until we get to...
Dec 31, 2024


Finding Strength: How Blogging Made a Difference in My Life with Lupus
Diagnosed in my early twenties, lupus has been a large part of my life for many years. Although, I feel that I had been suffering from...
Oct 22, 2024


Lupus and Chronic Pain
National Pain Awareness Month is observed in September every year. This is a time when pain experts and activists from all around get...
Sep 20, 2024


Beyond Brave
“You’re so brave.” How many times have you been told that you are “ brave? ” When that happens, how does it make you feel? Are you...
Sep 2, 2024


Using My Spoons
SPOON THEORY: Christine Miserandino, an author with lupus, invented the spoon theory one day when her friend wanted to understand what...
Jul 12, 2024


Introducing Lupus Lyfts!
Historically, one of the biggest barriers to care in lupus patient groups is transportation. This problem has a disproportionate impact...
May 25, 2024


10 Lupus Tips on May 10th!
On World Lupus Day, we were joined by Dr. Don Thomas, Board Certified Rheumatologist and author of The Lupus Encyclopedia. In his...
May 10, 2024


Use Your Patient Power to Improve Lupus Diagnostics!
Lupus is a chronic inflammatory autoimmune disease with a wide range of clinical presentations resulting from its effect on multiple...
May 9, 2024


Lupus and Sexual Assault
April is Sexual Assault Awareness Month. You may be wondering, “Why is a lupus nonprofit writing a blog on sexual assault awareness?” The...
Apr 21, 2024


I Got Retinopathy from HCQ. Here is My Story...
I was diagnosed with lupus in June 1992. It took me six years to get diagnosed. I was on glucocorticoids (Prednisone/Prednisolone),...
Mar 26, 2024


Why I Choose to Wear Makeup While Living with a Chronic Illness
We have all been told those infamous words, “You don’t look sick,” more times than we care to recall. Due to this, I thought I would...
Jan 13, 2024


"I'm Fine"
What is the most common response when someone asks, “How are you feeling?” If you are like the majority of lupus patients, the first...
Oct 28, 2023


My Lupus Story
I was diagnosed 31 years ago with pSLE. Here is my story. I was diagnosed with lupus in June 1992. It took me six years to get diagnosed....
Oct 26, 2023
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