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đ The Hidden Challenges: Top 5 Difficulties for Lupus Patients During the Holidays
The holiday season is often advertised as a time of joy, endless energy for non-stop events, and celebratory gatherings. While that's true for many, for those living with lupus , this time of year presents a unique set of challenges that can make the "most wonderful time of the year" feel more woeful than wonderful . Lupus is a chronic autoimmune disease where the immune system mistakenly attacks healthy tissue, causing inflammation and damage in various parts of the body.
Oct 29, 2025
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A Unique Journey: The Challenges of Pregnancy and Motherhood with Lupus
For women living with lupus, the desire to start or grow a family comes with a unique set of questions and anxieties. Itâs not simply a matter of getting pregnant, but of managing a complex autoimmune disease while supporting a pregnancy, which is often called a "high-risk" journey. While having a successful, healthy pregnancy with lupus is absolutely possible, it requires meticulous planning, close monitoring, and teamwork with specialists. Most recent studies and clinical
Oct 19, 2025
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"Pill Fright": Why Starting New Lupus Meds Can Feel Terrifying
Receiving a new prescription when you have lupus is often a moment of mixed emotions. There's the hope  that this drug will finally get your flares under control and give you back some quality of life. But often, that hope is quickly overshadowed by fear . If you've ever held a new pill bottle and felt a wave of anxiety, youâve experienced what many in the chronic illness community call "pill fright" or medication anxiety. For those with lupus, this fear is especially intense
Oct 17, 2025
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Why Am I Gaining Weight with Lupus? Understanding the Connection
Living with lupus is a constant balance of managing inflammation, dealing with unpredictable flares, and navigating complex treatments. For many, an unexpected and frustrating challenge is unexplained weight gain . If you're finding the scale creeping up while managing your lupus, know that youâre not alone. The weight gain associated with lupus is often a direct result of the disease itself and the medications used to treat it, rather than just changes in diet or activity.
Oct 14, 2025
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Navigating Life with Lupus: 7 Essential Things to Know
Lupus is a chronic autoimmune disease  that can affect virtually any part of your bodyâfrom your skin and joints to your kidneys, blood,...
Oct 12, 2025
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Chronic Illness and Your Nervous System: Understanding the Polyvagal Theory
If you live with a chronic illness, you know the daily reality is a constant battleânot just against physical symptoms, but also against...
Oct 9, 2025
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Understanding Lupus: What Causes This Complex Autoimmune Disease?
Lupus is a chronic autoimmune disease that affects millions of people worldwide. Unlike a typical immune system that fights off foreign...
Oct 6, 2025
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Lupus and Perimenopause: Managing the Transition
Women navigating perimenopause while living with lupus face a complex intersection of hormonal shifts and autoimmune activity....
Sep 23, 2025
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Living with a Chronic Illness in the U.S. is Hard
In the U.S., a significant lack of public understanding about chronic illnesses like lupus makes living with the condition incredibly...
Sep 21, 2025
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Understanding Lupus: A Complex Autoimmune Disease
Lupus is a chronic autoimmune disease that can affect many parts of the body. An autoimmune disease occurs when the body's immune system,...
Sep 15, 2025
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Are GLP-1 Medications Safe for People with Lupus? A Closer Look
GLP-1 medications like Ozempic, Wegovy, and Mounjaro have become a hot topic for their effectiveness in weight loss and managing blood...
Sep 11, 2025
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Navigating New Health Policies: A Look at the Impact on Chronic Illness and the Immunosuppressed
For many Americans living with chronic health conditions or immunosuppression, the state of public health policy is something that needs...
Sep 9, 2025
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Dysautonomia in Autoimmune Disease
I have had autoimmune disease for several years now. Right now, lupus and scleroderma/MCTD are driving the immune system. Itâs been a...
Jun 19, 2025
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Respecting Your Energy Budget vs. Visiting the Lupus Loan Shark
By Margie Willis Able-bodied people can afford to be reckless with their daily energy budgets. But if you have lupus, you can't get away...
Jun 7, 2025
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Do You Have Lupus?
The Lupus Symptom Checklist from the American College of Rheumatology If you have watched any episode of the TV show âHouseâ you have heard the main character utter (in frustration) the infamous words, âItâs not lupus.â However, if you are reading this, I assume you might be suspecting it might indeed be lupus.   Going in circles from specialist to specialist, trying to figure out various bizarre and overwhelming symptoms can be incredibly puzzling. How do you know if it ac
Feb 21, 2025
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How Rolling Back DEI Programs Will Impact the Disability and Chronic Illness Community
Only a few days into his second term in office, President Trump and his administration have not held back on their promises to target and terminate federal government agencies that oversee diversity, equity, and inclusion programs. In his words, these âillegal and immoralâ DEI programs and the employees who work for them  (now placed on paid leave until a written plan for their dismissal is submitted by the end of January) were part of a âradical and wastefulâ process âunder
Jan 30, 2025
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Time to Thrive in 2025!
âOur job is not to deny the story, but to defy the ending-to rise strong, recognize our story, and rumble with the truth until we get to...
Dec 31, 2024
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Finding Strength: How Blogging Made a Difference in My Life with Lupus
Diagnosed in my early twenties, lupus has been a large part of my life for many years. Although, I feel that I had been suffering from...
Oct 22, 2024
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Lupus and Chronic Pain
National Pain Awareness Month is observed in September every year. This is a time when pain experts and activists from all around get...
Sep 20, 2024
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Beyond Brave
âYouâre so brave.â  How many times have you been told that you are â brave? â When that happens, how does it make you feel? Are you...
Sep 2, 2024
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