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Join date: May 1, 2018
Posts (169)
Jun 14, 2026 ∙ 4 min
Breaking the Silence: Being a Man with Lupus
June is Men’s Health Month, a time usually dominated by conversations about heart health, prostate checks, and mental well-being. But there is an often overlooked, heavily misunderstood group of men facing a unique battle every single day: men living with lupus. When most people hear the word "lupus," they picture a disease that only affects women. Statistically, that’s understandable—90% of people diagnosed with lupus are female. However, that remaining 10% represents thousands of men who...
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Apr 30, 2026 ∙ 3 min
May is Lupus Awareness Month 2026: What's Behind the Purple Ribbons & Bracelets
As we enter May 2026, the lupus community is standing at a pivotal crossroads. While "awareness" has historically been about making the invisible visible, this year is about moving from recognition to actionable support and precision care. Lupus is a complex, chronic autoimmune disease that can affect any organ system in the body, from the skin and joints to the kidneys, heart, and brain. Because its symptoms often mimic other conditions—and vary wildly from person to person—the "average"...
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Apr 20, 2026 ∙ 3 min
The Empathy Expiration Date: Why Chronic Illness Doesn't Get the Long-Term Support It Deserves
There is a familiar trajectory for many living with chronic illness like lupus. In the beginning, there is an outpouring of support— casseroles, "let me know if you need anything" texts, and genuine concern. But as the months turn into years, the support often thins. The questions about your health shift from "How are you feeling?" to "Are you better yet?" Eventually, the people who were once your biggest cheerleaders may start to exhibit subtle or not-so-subtle forms of ableism . It can be...
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