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Join date: May 1, 2018

Posts (166)

Apr 4, 20265 min
The "Goldilocks" Dose: Why Precision Matters with Hydroxychloroquine
If you have lupus, hydroxychloroquine (HCQ)—often known by the brand name Plaquenil—is likely the cornerstone of your treatment. In the lupus community, we often call it "the lupus life insurance" because it reduces flares, protects organs and even extends life expectancy. However, in 2026, the conversation around HCQ has shifted from "everyone should take 5 mg/kg per day or less" to a much more precise, personalized approach. Because with this drug, the difference between a life-saving dose...

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Mar 13, 20266 min
The Cost of Waiting: Why Insurance Approval Delays Are Dangerous for Lupus Patients
For someone with lupus, a "waiting period" isn’t just an inconvenience—it’s a window for irreversible damage. While the 2026 State of the Union address focused on "speeding up" healthcare, the reality on the ground is that many patients are still stuck in a dangerous limbo between a doctor's prescription and an insurance company’s "yes." This delay, often driven by Prior Authorization (PA)  and Step Therapy , is more than just red tape; for the chronic illness community, it is a clinical...

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Mar 10, 20264 min
The Invisible Battle: Why Winning SSDI for Lupus is So Tough (And How to Win Anyway)
If you are living with lupus, you already know that "invisible" doesn't mean "not there." But when it comes to the Social Security Administration (SSA), if they can't see it on an X-ray or a standard blood test, they often can act and make you feel like it doesn't exist. Getting approved for Social Security Disability Insurance (SSDI) with lupus is notoriously difficult—not because the disease isn't disabling, but because the system wasn't built for the "flare and remit" nature of autoimmune...

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rosetakelli

rosetakelli

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