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Join date: May 1, 2018

Posts (172)

Jul 5, 20264 min
Summer Fun on Your Own Terms: How to Enjoy the Season with Lupus
When summer arrives, the seasonal message is loud and clear: get outside, soak up the sun, and enjoy those hot sunny vibes. But if you are living with lupus, that narrative can feel downright alienating—and dangerous. With roughly 40% to 70% of people with lupus experiencing photosensitivity (where ultraviolet or UV rays trigger everything from butterfly rashes to systemic fatigue, headaches, fevers, and joint pain), traditional summer activities can feel like a medical gamble. The good...

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Jun 30, 20265 min
How to Support a Friend Having a Bad Lupus Day (Without Making It About You)
When a friend, partner, or family member is living with lupus, witnessing their flare-ups can leave you feeling incredibly helpless. You want to say the perfect thing to take away their pain, but in our rush to comfort, it’s remarkably easy to accidentally center the conversation around ourselves. Saying things like "I know exactly how you feel, I was exhausted yesterday" or "It breaks my heart to see you like this, I’ve been crying all morning" might come from a place of love, but it...

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Jun 28, 20264 min
New Lupus Treatments in the Pipeline
For decades, treating lupus meant relying heavily on broad-spectrum immunosuppressants and high-dose steroids. While these medications saved lives, and still are helpful, they often felt like using a hammer to fix a watch—shutting down major parts of the immune system and, in some cases, bringing a host of challenging side effects. The pipeline for systemic lupus erythematosus (SLE) and lupus nephritis is undergoing a massive shift. Instead of globally silencing the immune system, the...

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rosetakelli

rosetakelli

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