As we enter May 2026, the lupus community is standing at a pivotal crossroads. While "awareness" has historically been about making the invisible visible, this year is about moving from recognition to actionable support and precision care. Lupus is a complex, chronic autoimmune disease that can affect any organ system in the body, from the skin and joints to the kidneys, heart, and brain. Because its symptoms often mimic other conditions—and vary wildly from person to person—the "average"...

There is a familiar trajectory for many living with chronic illness like lupus. In the beginning, there is an outpouring of support— casseroles, "let me know if you need anything" texts, and genuine concern. But as the months turn into years, the support often thins. The questions about your health shift from "How are you feeling?" to "Are you better yet?" Eventually, the people who were once your biggest cheerleaders may start to exhibit subtle or not-so-subtle forms of ableism . It can be...

If you have lupus, hydroxychloroquine (HCQ)—often known by the brand name Plaquenil—is likely the cornerstone of your treatment. In the lupus community, we often call it "the lupus life insurance" because it reduces flares, protects organs and even extends life expectancy. However, in 2026, the conversation around HCQ has shifted from "everyone should take 5 mg/kg per day or less" to a much more precise, personalized approach. Because with this drug, the difference between a life-saving dose...